Ragnhild Halvorsrud
SINTEF Digital, Norway
Mette Røhne
SINTEF Digital, Norway
Elisabeth G. Celius
Oslo University Hospital, Department of Neurology, Norway
Stine Marit Moen
MS Center Hakadal, Norway
Frode Strisland
SINTEF Digital, Norway
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Published in: SHI 2019. Proceedings of the 17th Scandinavian Conference on Health Informatics, November 12-13, 2019, Oslo, Norway
Linköping Electronic Conference Proceedings 161:25, p. 148-153
Published: 2019-11-07
ISBN: 978-91-7929-957-6
ISSN: 1650-3686 (print), 1650-3740 (online)
Multiple sclerosis (MS) is a chronic disease with a highly variable course, and patients face a large number of health professionals during treatment and follow-up. We introduce a methodology for detailed analysis and visualisation of patient journeys. The purpose was to gain insight into MS-patients’ needs, experiences, and desires. A case study with three patients over a period of 4-6 weeks revealed how they interact with health professionals in managing their disease. We have identified several areas where digital tools may improve the patients’ quality of life, and support health professionals in their follow-up and treatment of MS.
Patient journey methodology, multiple sclerosis, patient needs, digital support.
