Conference article

Experts Perception of Patient-Reported Outcomes (PROs) in a Danish Context

Jeppe Eriksen
Aalborg University, Aalborg, Denmark

Ann Bygholm
Aalborg University, Aalborg, Denmark

Pernille Bertelsen
Aalborg University, Aalborg, Denmark

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Published in: SHI 2019. Proceedings of the 17th Scandinavian Conference on Health Informatics, November 12-13, 2019, Oslo, Norway

Linköping Electronic Conference Proceedings 161:27, p. 160-165

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Published: 2019-11-07

ISBN: 978-91-7929-957-6

ISSN: 1650-3686 (print), 1650-3740 (online)

Abstract

This paper elucidates the understanding of Patient-Reported Outcomes (PROs) among experts in a Danish context. PROs are currently implemented on a regional and national level in Denmark (DK); even though, their purpose and functionality seem unclear. Methodologically the study is based on seven semi-structured interviews with core PRO-experts. PRO was identified as: data on an individual/population level; an active/passive functionality; contextual dependent; quality improvements; Value-Based Healthcare; patient-centred care; part of clinical practice; technology and as an economic tool. An analysis of the discrepancies among PRO-experts reveals that their perceptions are associated with their experiences and/or organizational positions.

Keywords

Patient-reported outcome, PRO, PROM, HRQoL, PRO-experts

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