Conference article

A CLARIN Contractual Framework for Sharing Personal Data for Scientific Research

Krister Lindén
University of Helsinki, Finland

Aleksei Kelli
University of Tartu, Estonia

Alexandros Nousias
Nousias/Linardos Business & Legal Consultants

Download articlehttps://doi.org/10.3384/ecp2020172010

Published in: Selected Papers from the CLARIN Annual Conference 2019

Linköping Electronic Conference Proceedings 172:10, s. 75-84

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Published: 2020-07-03

ISBN: 978-91-7929-807-4

ISSN: 1650-3686 (print), 1650-3740 (online)

Abstract

The development and use of language resources often involve the processing of personal data. Processing has to have a legal ground. The General Data Protection Regulation (GDPR) provides several legal grounds. In the context of scientific research, Consent, Public interest and Legitimate interest are relevant. The main question is when researchers should rely on Consent and when on Public or Legitimate interest to conduct research. All three grounds have their advantages and challenges. For comparing Consent and Public interest, the Clinical Trial Regulation is used as an example. In addition, we study how this has been implemented in Finland based on the guidelines for research data from the Data Protection Ombudsman and suggest an update of the CLARIN Deposition License Agreement templates to accommodate data sets with personal data.

Keywords

General Data Protection Regulation, Reuse of personal data, contractual framework

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