Mapping Care: a Case Study of Dementia Service Provision in the North East of England

Daniel Carey
Northumbria University, Newcastle upon Tyne, UK

Paul Rodgers
Northumbria University, Newcastle upon Tyne, UK

Andy Tennant
Northumbria University, Newcastle upon Tyne, UK

Katie Dodd
Northumbria University, Newcastle upon Tyne, UK

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Ingår i: Service Design Geographies. Proceedings of the ServDes.2016 Conference

Linköping Electronic Conference Proceedings 125:31, s. 376-389

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Publicerad: 2016-05-17

ISBN: 978-91-7685-738-0

ISSN: 1650-3686 (tryckt), 1650-3740 (online)


This paper reports on the first author’s ongoing Arts and Humanities Research Council (AHRC) funded PhD research, exploring the potential for design disruption interventions within the context of informal health and social care. The paper describes a specific project to map the experiences of people caring for dementia patients, exploring their interactions with governmental and charitable support organisations, their perception of the services available to them, and other informal methods they employed to cope with the caring role. The findings offer a new way of visualising the complex interrelationships between these organisations, and highlight a number of important issues faced by informal carers. These include a pressing need for clearer, more accessible support pathways, clarification of the role and duties of some support organisations, and the value of intangible forms of assistance such as emotional support. These findings will form the basis for future disruptive design interventions in this area.


design disruption, mapping, health, social care, informal, intervention, carer, dementia, visualization, timeline, PhD, research, experience


Arrhenius, L., Ryman, G., and Wilson, A., Lars Arrhenius A-Z, Peer, London, 2003 (second edition).

Beckett, S., & Tophoven-Schöningh, E. (1983). Worstward ho (pp. 14-14). London: John Calder.

Bisson, C. and Luckner, J., “Fun in Learning: The Pedagogical Role of Fun in Adventure Education. Perspectives”, Journal of Experiential Education, 19 (2), 1996, pp. 108 - 112.

Brown, T. (2009) Change by Design: How design thinking transforms organizations and inspires innovation. [ebook version] London: HarperCollins. Retrieved from http://www.amazon.co.uk/Change-Design-Transforms-Organizations-Innovation/dp/0061766089 on 24th October 2014.

Buckner, L., and Yeandle, S. (2011) Valuing Carers: Calculating the Value of Carer Support. Leeds, University of Leeds. pp 2-3.

Carers UK. (2015) State of Caring 2015. Retrieved from http://www.carersuk.org/forprofessionals/policy/policy-library/state-of-caring-2015 on 4th September 2015

Cresswell, J. W., Research Design: Qualitative, Quantitative, and Mixed Methods Approaches, SAGE Publishers, Thousand Oaks, CA, 2003 (Second Edition).

Deleuze, G., & Guattari, F. (1988). A thousand plateaus: Capitalism and schizophrenia. Bloomsbury Publishing, London.

Design Commission. "Restarting Britain 2: Design and Public Services." Annual Review of Policy Design 2.1 (2014): 1-10.

Gaver, W., Boucher, A., Pennington, S. and Walker, B., “Cultural Probes and the Value of Uncertainty”, Interactions - Funology, Vol. 11, No. 5, 2004, pp. 53-56.

Harmon, K. (2004) You Are Here: Personal Geographies and Other Maps of the Imagination, Princeton Architectural Press, New York

Keady, J. and Nolan, M. (2003). The dynamics of dementia: Working together, working separately, or working alone? In Nolan M, Lundh U et al (Eds.), Partnerships in Family Care, Open University Press

Kitwood, T. (1990) "The dialectics of dementia: with particular reference to Alzheimer’s Disease", Ageing and Society, Vol 10, pp. 177-196

Likert, R. (1932). “A Technique for the Measurement of Attitudes”. Archivs of Psychology, 140, 1-55.

Mau, B. (2005) Massive Change: Bruce Mau and the Institute without Boundaries. Phaidon Michlewski, K. (2015) Design Attitude. Ashgate, London.

Miles, M. B. & Huberman, A. M. (1994). Qualitative data analysis. Thousand Oaks, CA.

Mulgan, G, et al. (2007) Social innovation: what it is, why it matters and how it can be accelerated. 1st edn. London: The Basingstoke Press.

O’Rourke, Karen. (2013) Walking and Mapping: Artists as Cartographers. MIT, Cambridge, MA.

Rodgers, P. A., Tennant, A., and Dodd, K. “Disrupting Health and Social Care by Design”, Proceedings of the 9th International Conference on Design & Emotion – The Colors of Care, Bogota, Colombia, 6 – 10 October 2014.

Sadler, S. (1999). The Situationist City. MIT press, Cambridge, MA. Simon, H. A. (1996). The Sciences of the Artificial (Vol. 136) MIT Press.

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