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Mapping Care: a Case Study of Dementia Service Provision in the North East of England

Daniel Carey
Northumbria University, Newcastle upon Tyne, UK

Paul Rodgers
Northumbria University, Newcastle upon Tyne, UK

Andy Tennant
Northumbria University, Newcastle upon Tyne, UK

Katie Dodd
Northumbria University, Newcastle upon Tyne, UK

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Ingår i: Service Design Geographies. Proceedings of the ServDes.2016 Conference

Linköping Electronic Conference Proceedings 125:31, s. 376-389

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Publicerad: 2016-05-17

ISBN: 978-91-7685-738-0

ISSN: 1650-3686 (tryckt), 1650-3740 (online)

Abstract

This paper reports on the first author’s ongoing Arts and Humanities Research Council (AHRC) funded PhD research, exploring the potential for design disruption interventions within the context of informal health and social care. The paper describes a specific project to map the experiences of people caring for dementia patients, exploring their interactions with governmental and charitable support organisations, their perception of the services available to them, and other informal methods they employed to cope with the caring role. The findings offer a new way of visualising the complex interrelationships between these organisations, and highlight a number of important issues faced by informal carers. These include a pressing need for clearer, more accessible support pathways, clarification of the role and duties of some support organisations, and the value of intangible forms of assistance such as emotional support. These findings will form the basis for future disruptive design interventions in this area.

Nyckelord

design disruption, mapping, health, social care, informal, intervention, carer, dementia, visualization, timeline, PhD, research, experience

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