Konferensartikel

Towards a protocol for the curation and dissemination of vulnerable people archives

Silvia Calamai
University of Siena, Italy

Chiara Kolletzek
Lawyer and Record Manager, Bologna, Italy

Aleksei Kelli
University of Tartu, Estonia

Ladda ner artikel

Ingår i: Selected papers from the CLARIN Annual Conference 2018, Pisa, 8-10 October 2018

Linköping Electronic Conference Proceedings 159:3, s. 28-38

Visa mer +

Publicerad: 2019-05-28

ISBN: 978-91-7685-034-3

ISSN: 1650-3686 (tryckt), 1650-3740 (online)

Abstract

This paper aims at introducing possible guidelines in defining a protocol for the curation and dissemination of speech archives, which appear to have – de jure – the highest restrictions on their curation and dissemination. This case study has been undertaken because of the discovery of the Anna Maria Bruzzone archive, containing the voices of people with mental disabilitie recorded in 1977 in an Italian psychiatric hospital.

Nyckelord

Speech archives, Vulnerable people, Personal data, Privacy, General Data Protection Regulation (GDPR)

Referenser

[Case C-101/01] Case C-101/01. Criminal proceedings against Bodil Lindqvist. 6 November 2003. Available at http://eur-lex.europa.eu/legal-content/EN/TXT/?qid=1521039149443&uri=CELEX:62001CJ0101 (14.4.2018);

[Charter] Charter of Fundamental Rights of the European Union. 2012/C 326/02. OJ C 326, 26.10.2012, p. 391–407 (BG, ES, CS, DA, DE, ET, EL, EN, FR, IT, LV, LT, HU, MT, NL, PL, PT, RO, SK, SL, FI, SV). Available at http://eur-lex.europa.eu/legal-content/EN/TXT/?uri=CELEX:12012P/TXT (14.4.2018);

[Data Protection Directive] Directive 95/46/EC of the European Parliament and of the Council of 24 October 1995 on the protection of individuals with regard to the processing of personal data and on the free movement of such data. Official Journal L 281, 23/11/1995 p. 0031 – 0050. Available at http://eur-lex.europa.eu/legalcontent/EN/TXT/HTML/?uri=CELEX:31995L0046&qid=1522340616101&from=EN (29.3.2018);

[GDPR] Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (General Data Protection Regulation). OJ L 119, 4.5.2016, p. 1-88.

Available at http://eur-lex.europa.eu/legal-content/EN/TXT/?qid=1515793631105&uri=CELEX:32016R0679 (29.3.2018);

[González-Rodríguez et. al. 2008] Joaquín González-Rodríguez, Doroteo Torre Toledano, Javier Ortega-García (2008). Voice Biometrics. In Handbook of Biometrics edited by Anil K. Jain, Patrick Flynn, Arun A. Ross. Springer;

[IPDPC] Italian Personal Data Protection Code. Legislative Decree 30.06.2003 No. 196. English version available at: http://194.242.234.211/documents/10160/2012405/Personal+Data+Protection+Code+-+Legislat.+Decree+no.196+of+30+June+2003.pdf (11.4.2018);

[Jain et. al. 2004] Anil K. Jain, Arun Ross, Salil Prabhakar (2004). An Introduction to Biometric Recognition. - IEEE Transactions on Circuits and Systems for Video Technology 14(1). Available at https://www.cse.msu.edu/~rossarun/BiometricsTextBook/Papers/Introduction/JainRossPrabhakar_BiometricIntro_CSVT04.pdf (31.3.2018);

[Kelli et al. 2015] Aleksei Kelli, Kadri Vider, Krister Lindén (2015). The Regulatory and Contractual Framework as an Integral Part of the CLARIN Infrastructure. 123: Selected Papers from the CLARIN Annual Conference 2015, October 14–16, 2015, Wroclaw, Poland. Ed. Koenraad De Smedt. Linköping University Electronic Press, Linköpings universitet, 13-24. Available at https://www.ep.liu.se/ecp/article.asp?issue=123&article=002 (20.8.2018);

[Kelli et al. 2018] Kelli, Aleksei; Lindén, Krister; Vider, Kadri; Kamocki, Pawel; Birštonas, Ram􀇌nas; Calamai, Silvia; Kolletzek, Chiara; Labropoulou, Penny; Gavriilidou, Maria (2018). Processing personal data without the consent of the data subject for the development and use of language resources. CLARIN Annual Conference 2018 Proceedings: CLARIN Annual Conference 2018, 8-10 October 2018 Pisa, Italy. Ed. Inguna Skadin, Maria Eskevich. CLARIN, 43-48. Available at https://office.clarin.eu/v/CE-2018-1292-CLARIN2018_ConferenceProceedings.pdf (28.1.2019);

[Oostveen 2016] Manon Oostveen. Identifiability and the applicability of data protection to big data. International Data Privacy Law, 2016, Vol. 6, No. 4, 299- 309;

[Spindler, Schmechel 2016] G. Spindler, P. Schmechel (2016). Personal Data and Encryption in the European General Data Protection Regulation. - JIPITEC 7 (2), 163-177. Available at https://www.jipitec.eu/issues/jipitec-7-2-2016/4440/spindler_schmechel_gdpr_encryption_jipitec_7_2_2016_163.pdf (14.4.2018);

[WP29 2017] WP29. Guidelines on Consent under Regulation 2016/679. Adopted on 28 November 2017 [adopted, but still to be finalized]. Available at http://ec.europa.eu/newsroom/article29/itemdetail.cfm?item_id=615239 (2.4.2018);

[WP29 2014] WP29. Opinion 05/2014 on Anonymisation Techniques. Adopted on 10 April 2014. Available at http://collections.internetmemory.org/haeu/20171122154227/http://ec.europa.eu/justice/dataprotection/article-29/documentation/opinion-recommendation/files/2014/wp216_en.pdf (20.8.2018).

[WP29 2007] WP29. Opinion 4/2007 on the concept of personal data. Adopted on 20th June. Available at https://ec.europa.eu/justice/article-29/documentation/opinion-recommendation/files/2007/wp136_en.pdf (26.3.2019).

Citeringar i Crossref